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Living with Myotonic Muscular Dystrophy: Kobe Johnson

Kobe has what's called myotonic muscular dystrophy, which is why he's in a wheelchair. He tires easily and can't run and jump like many kids.
He's pretty close to being a perfect shot - and it's all strategy.

“The trajectory of the arrow. When you shoot it goes up.”

Twelve-year-old Kobe Johnson loves archery and he's good at it.

But for Kobe, MDA camp is more than archery. It’s more than canoeing on the lake or doing arts and crafts. It’s an escape from something rather painful.

“It doesn't really matter what the other kids say. They say really mean things like I have fat legs or I walk weird or I walk like a penguin that's what they say.”

As Kobe began to warm up to his new camp surrounding, he confided further with his camp counselor

“He told me how kids would push him down and take his lunch money and the teacher did nothing about it. That made me realize right off the bat that I wanted him to have a good time.”

Kobe has what's called myotonic muscular dystrophy, which is why he's in a wheelchair. He tires easily and can't run and jump like many kids.

But today Kobe's not thinking about that. He's thinking about the many things he will get to do at camp, not to mention the food.

“They have some good food here.”

Kobe is one of many kids who feel MDA camp is a wonderful place to be. And when the week is over he'll head home already thinking about next year. Knowing that there is a place where everything that's good is even better.

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